At our core, we believe no child or teen should face Ehlers-Danlos Syndrome (EDS) and its comorbities alone. As a nonprofit organization, we’re dedicated to supporting young people living with EDS through community, education, and advocacy. Whether you're newly diagnosed or have been diagnosed with EDS for years, you're not alone here. We’ve built safe, inclusive spaces, both online and in person—where youth and their families can connect, share their stories, and find the support they deserve. This is more than a support network. It’s a movement. Together, we’re creating a future where young people with EDS don’t just survive, they thrive.