Cute cartoon zebra head with pink cheeks and black stripes, under the phrase 'Stripes in Stride'.

Our Board

  • Young girl with green eyes and long, pink-tinted hair smiling while sitting in a car. She is wearing a cream-colored top, a colorful beaded necklace, and a name tag that reads 'Alexa.'

    Alexa Walters

    President, founder

  • A smiling woman with short reddish-brown hair, a nose piercing, wearing a black shirt and silver necklace, against a solid red background.

    Milo Jackson

    Outreach Coordinator

  • Close-up of a man with dark curly hair, wearing clear eyeglasses and a black sweater, sitting indoors with a light background and a green plant in the background.

    Michaela Williams

    Treasurer

  • A woman with shoulder-length black hair smiling in a green indoor garden.

    Cora Mascott

    Member

  • Jackie Lopez-Giang

    Member

  • McKenna Hanna

    Resource Coordinator

About Us

We are a team of 6 driven, passionate, and devoted individuals, who are committed to making a difference in the lives of young people living with Ehlers-Danlos Syndrome, and related conditions. We all either live with Ehlers-Danlos Syndrome, or have a deep personal connection to EDS and chronic illness. At our core, we believe no person should face these conditions alone, and that community truly can save lives. Through community events, support groups, sharing individual stories, and online resources, we work to ensure nobody living with EDS & co faces these challenges alone.

Learn more
Two young women standing outdoors on a wooden deck, smiling at the camera, wearing matching purple t-shirts that say "Chronic but Iconic." One woman has long blonde hair and is holding a scooter, while the other has long light brown hair and is wearing a watch.

Let’s get social!

Contact Us

Interested in working together? Fill out some info and we will be in touch shortly. We can’t wait to hear from you!