Our Board
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Alexa Walters
President, founder
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Milo Jackson
Outreach Coordinator
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Michaela Williams
Treasurer
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Cora Mascott
Member
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Jackie Lopez-Giang
Member
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McKenna Hanna
Resource Coordinator
About Us
We are a team of 6 driven, passionate, and devoted individuals, who are committed to making a difference in the lives of young people living with Ehlers-Danlos Syndrome, and related conditions. We all either live with Ehlers-Danlos Syndrome, or have a deep personal connection to EDS and chronic illness. At our core, we believe no person should face these conditions alone, and that community truly can save lives. Through community events, support groups, sharing individual stories, and online resources, we work to ensure nobody living with EDS & co faces these challenges alone.
Let’s get social!
Contact Us
Interested in working together? Fill out some info and we will be in touch shortly. We can’t wait to hear from you!