In medical training, doctors are told, “When you hear hoofbeats, think horses, not zebras”. In the case of EDS, we are the zebras, the patients doctors aren’t trained to look for.

First, try not to spiral. It can be so hard with the entire internet at our fingertips, but it is important to get information from credible, reuputable sources. Contact your primary care provider, and set up an appointment. Bring up your concerns, and ask for guidance. Sometimes doctors don’t know what Ehlers-Danlos Syndrome is, or how to treat it. If that is the case, the Ehlers-Danlos Society has a provider database on their website. You can input your location and find EDS knowledgeable providers near you.

Thanks for your support and interest! We have an instagram and Facebook page where we share educational resources and infographics, as well as resources for students and patients. If you are interested in giving a monetary donation, we are accepting donations through our website, in the ‘donations’ tab. Your donations will help us further our mission of providing a better world for all EDS patients.

We love working with other non-profits and small businesses in and around our community! To contact us, email stripesinstride3@gmail.com, or send us a message through our website. We look forward to working with and hearing from you!

Yes! We host monthly virtual support group meetings for people aged 18 and under with EDS and its comorbid conditions. The link to register is in our instagram bio!